I am on the budesonide now. I don’t like the side effects, but it is helping some symptoms. It sounds like this med is not really going to heal anything. Have you tried the bile acid binders….however you say that. It has been suggested. Is hope for any remission even sane or should I just accept and get used to how life is now. I wonder about the monoclonal antibody…infusions I think? My medical care is so ineffective, I am so disappointed in how the Mayo in AZ has handled me.
So many questions and so frustrating to say the least I have such sympathy for ones who have it so much worse with gut issues. Celiac Hashimotos and LC are just about too much to get a grasp on.