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Polymyalgia Rheumatica (PMR) | Last Active: Jan 21, 2023 | Replies (106)
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Hello SueEllen 😃 wow, I can’t believe this is happening to you too. Hugs 🤗
Hopefully we will be ok until properly diagnosed. Have you gone to an endocrinologist? I was advised to see them too.
Replies to "Hello SueEllen 😃 wow, I can’t believe this is happening to you too. Hugs 🤗 Hopefully..."
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No, I see a local Rheumatologist and she is consulting with the rheumatologist at Mayo.
As you know, GCA/PMR are forms of Vasculitis.
I also have another form of Vasculitis. My Polyarteritis Nodosa was diagnosed in 2015 via biopsy. It’s a very rare disease. So, my arteries are inflamed already. However, the GCA symptoms are very different.
I don’t know what an endocrinologist would be helpful for. This is an autoimmune disease therefore a rheumatologist is the specialist.
My Polyarteritis Nodosa is so rare I have had to teach my health care professionals about it because they have never seen it before! Now, that’s frustrating!
There is a Vasculitis Foundation you can check out for more information.
Have a great day! 🌻