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← Return to COVID vaccines and neuropathy
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Thank you, Debbie. In my own year-long quest for a diagnosis of what turned out to be "likely clinically isolated demyelination syndrome" I went down many rabbit holes of this type, including B6 toxicity. I'd had two doses of Shingrix several months before onset. Not knowing what I had made it easy to make wild guesses at causation. I finally got a diagnosis but of course causation was still an open question. In the past year, two very strong papers have come out suggestion that MS (and CIDS) are auto-immune reactions to re-activated Epstein-Barr. But most neurological conditions have no known cause other than genetics.
I have to disagree with you about "any database is good." The educated know that a database like VAERS is "GIGO" - garbage in, garbage out. A good database is one that is designed to answer a specific question and the manner of data collection is critically important.
There is no indication that SARS-CoV-2 started in multiple places in the world. The World Health Organization has a reporting system. There was a rapid outbreak in China, centered in Wuhan. The WHO was alerted on 12/31/19. https://www.cdc.gov/museum/timeline/covid19.html
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Kind of like weather forecasting, you take what data you have, experience, make all these models, and still hard to predict! But sometimes they get it right, and for many of us it’s not close enough.
Sorry to hear what you’ve been going through. I will say that the Shingrex vaccine is the worst I’ve ever had in my life! But not the cause of my neuropathy, since I already had that. But the shingles I had 6 months before my Shingrex vaccine was a lot lot worse.
As for this site, we read of those who think the Covid vaccine is the cause of their neuropathy. I know people who reported it’s caused their hair loss, heart palpitations, eczema, GI issues, and blurred vision. So the VAERS reports on what this vaccine is thought to have caused have to be all over the map and certainly no way of knowing true cause of people’s reported conditions. I wouldn’t want to be the one employed to decipher it. You are obviously well informed, and I do rely on WHO and CDC on providing information that they’re resourced better than we are to inform, but how do you propose that real, statistically correct data is collected and folks can contribute? Quite the conundrum…