Anyone else gone gluten and dairy free to help improve symptoms

Posted by eileenb1022 @eileenb1022, Sep 30, 2022

Hi,
It has been suggested to me and i have talked to people who havegone gluten and dairy free that has helped their symptoms. justlooking for anyone here who has and interested if it has made a difference? if it has could you share some menu's or give me some ideas? and how long did it take for you to see improvement? i have some general ideas on what to buy but looking for more before i head out. its been suggested to me because i have hypothyroidism which until recently has been out of whack, hyperplasia with possibilityof autoimmune gastritis, possible sjorgens syndrome and maybe lichen sclorus. im waiting on specialists to confirm but i have to wait for appointments which is so hard. its kind of like starting fresh. in 15 months of being sick i have gotten little help so im traveling 3 hours to boston where i can get better help its just hard waiting for these appointments.i am seeing a naturpath dr in a few weeks never been to one so not sure what to expect but i think he is better than who previously i have seen. sorry to ramble just hoping someone here relates tome and can help me out. thank you!

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@artist01

@eileenb1022 Hey Girl, it sounds like you've got a good handle on things with regard to gluten free and lactose free lately. There's lots to learn, and researching the subject online offers a wealth of information as well. I know you'll find there's plenty of choice at grocery stores and many restaurants too. I was very pleased and surprised to find that so many restaurants are up to date on it.
Wishing you fun and adventure as you get more and more knowledge on the subject.
My best to you.
Laurie
P.S. I'm here if you have questions or concerns!

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Hi Laurie,
just got home from my shopping trip. i have a grocery store a little ways from me but not bad that someone told me had a really good gluten free dept. omg they sure did. everything i was looking for i found.it was great. expensive but great! lol. yeah i have done research and im on several groups on facebook that has helped me so much. this is all new to me but im learning. my husband is very supportive too. im trying to get him to eat the same way cause he needs to. he is making me a gluten free stir fry tomorrow night. yes i have a gluten free app to find GF restaurants which is how i found this restaurant today. im really excited. i know i have a lot of inflammation so i know this is the best thing to do. sorry to be gabbing so much!
Have a good night from New Hampshire! Eileen

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@eileenb1022

Hi Laurie,
just got home from my shopping trip. i have a grocery store a little ways from me but not bad that someone told me had a really good gluten free dept. omg they sure did. everything i was looking for i found.it was great. expensive but great! lol. yeah i have done research and im on several groups on facebook that has helped me so much. this is all new to me but im learning. my husband is very supportive too. im trying to get him to eat the same way cause he needs to. he is making me a gluten free stir fry tomorrow night. yes i have a gluten free app to find GF restaurants which is how i found this restaurant today. im really excited. i know i have a lot of inflammation so i know this is the best thing to do. sorry to be gabbing so much!
Have a good night from New Hampshire! Eileen

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@eileenb1022 Hi Eileen . It's wonderful to hear your excitement over your shopping trip! Some of my gluten free friends tell me that gluten is one of the top causes of inflammation in our bodies. That's a real eye opener so it's very worthwhile to stick to the program! Your hubby too!
As a side note, I asked my Gastroenterologist if I could have the gluten test, just to verify that I NEED to go gluten free. She didn't really want me to, but relented and told me I'd have to eat at least two slices of glutinous bread per day in order to rid myself of the effects of my gluten free regime, plus whatever other gluten-type foods come up in my everyday eating. I had to do that for at least 4 weeks and then go for the blood test. I did eat what I was told to, but I have to tell you I was in real trouble with my gut within the first week.
I learned my lesson. No more gluten for me, ever.

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@eileenb1022

oh wow i will look for it. i was planning to go shopping later today and needed more ideas this will help. thank you. i need to do this so i appreciate it so much.

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The group is now intrnatioal and thousands have been helped. Good luck. Another tip that I have found that is amazing is DSMO pharma grade 70-30 Aloe Vera. Purchase only at DSMOstore for best quality lowest price. Helps me deal with pain and has actually helped healing. Blessings.

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@eileenb1022

oh wow i will look for it. i was planning to go shopping later today and needed more ideas this will help. thank you. i need to do this so i appreciate it so much.

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One more tip that may be helpful, book: Cleanse to Heal. Recommendd by a member of another group who said her inflammation symptoms were reduced considerably by following cleanse suggestions. Author, Anthony William/ I just purchased book. In past, when symptoms of swelling-inflammation-pain became sever, I would go on water fast that helped temporarily. I used distilled water. Went three days one time recently. My problem is the gamma globulin I infuse weekly aggravates the rheumatc arthritis, so I am always looking for effective ways to reduce inflammation. This last illness was a byprouct of the Moderna vaccine. Hope you find something that works. Pleaselet me know if you are helped.

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Also be aware, there are fillers in our meds. And each month the manufacturer we are given can change which is why mail away pharms etc change the pill every month. Whatever is cheapest. But gluten and dairy powder is used as fillers in most meds. If you are allergic to the filler used, you won't absorb the meds correctly. And esp with generic thyroid. I also have hashimotos and only the brand name synthroid will keep me regulated. Generic my TSH once went up to 105! Yes, 105 (ended up with carpal tunnel surgery because of it. My insurance insisted I use Generic for 6 months. Nearly killed me. Tsh of 105 will have you in the ER pretty sick.

Our thyroids are so sensitive. Even pharmacies are not allowed to give you generic thyroid if you doctor orders brand name. Brand name synthroid is not even special approval on my current part D. Same with anti seizure meds.

But regardless, you can feel like you are on a gluten free diet and find out that the months your meds don't work, they contain gluten and are not digestable for you. And if it changes every month, hard to say meds aren't working when you are allergic to the ingredients. I have a friend who told me +blank+ drug never worked for her. I know it does if you get the right brand. Most are from India and there is very little FDA oversight. Research generics online. You will find many who get headaches like you do from a drug but when they changed to a different manufacturing, the headaches stopped. So it's NOT maybe that you can't take the meds, you need a filler you aren't allergic too.

Brand name synthroid stopped me from having my thyroid removed. My thyroid doc was the first one to tell me he thought I was allergic to the filler and it would be all fixed if I only used brand name. Many who work with thyroids know this, but some don't believe it's true.
There is a well researched book on amazon about the real deal with generic drugs. Very little supervision. Some manu plants in India don't even have one employee with a high school diploma and have no sterile rooms but lots of mice.
Look it up. Esp Sun Manufacturer. And most of the ones, the cheapest, probably on your bottle. You can have your doctor put the name of the manufacturer you need to get on the script. Like generic lamictal. There is only one that doesn't cause seizures to start up again which mean better control of bipolar too.

All meds are not created equal. Best of luck.
Check your meds for allergic items. Find a good manufacturer and stick with it. And even that, if it looks different next month, recheck the filler. Esp if it stops working. If your thyroid goes off the charts even tho "nothing changed. " The generic filler may very well have changed.

What I am saying is true. So some research. These places are closed down and reopened all the time. Many times with nothing fixed except drug shortages makes the FDA reopen filty manufacturing plants. Esp if tramadol etc get short. And not all tramedol works the same. I could say tons as I've done a lot of research and only use meds I've checked out. And then found a drug store carrying that brand. Ever wonder why some blood pressure meds work one month and not the next and the next thing you know you are on 4 blood pressure meds.

Sorry I went long. This is really important stuff.

So this is why I will never do mail away pharmacies. All white pills that are changed every month as they get the cheapest ones they can get that month. Or three months supply. I would rather shop local and know the manufacturer name.

I just got 10 vials of a med I inject myself (anti-inflammatory.) Within 20 minutes I am usually pain free for a day. Last time, nothing. Like it was water. I looked it up and it was a known bad manufacturer and NOT the same one I had last time. I found a pharmacy who could get the same as last time and got it refilled when I could 5 days later. I really want to take these vials to a lab and see if it's just water. Which is exactly how this was exposed. A cancer doctor had pts dying who shouldn't have been. He took their drug infusion drug to a lab and it WAS water. True story. Some of our pills are just pure corn starch. Sorry to go off on y'all it's just so vital to not decide a drug doesn't work when it might not be the drug which could really help you if it was a better manufacturer. Very few generics are made in the US, but some are. And Italy and israel can be a better choice than India or China for generic meds.

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Keep eating the same things you always have until your testing is complete and you have a solid diagnosis. Celiac hashimotos lymphocytic colitis here🫣

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Im currently doing a nutritional thing with Zoe Health (I have no relationship to them, but have 3 welcome codes if anyone is seriously interested) This one is different to just cutting out the various sugars in milk and wheat. Although there is a good set of information on cutting out all the bad sugars, known as low FODMAP on the NHS website, including dietary videos and an app to barcode foods to check whats in them. The Zoe one is the next step, where I am having blood, stool, and continuous glucose monitoring alongside food logging. They then test my reactions to sugars and fats, and dna profile the gut microbiome. Its a few hundred quid, so had to think carefully, but am really excited to get my results back, and then I have 4 months of refining my diet to reduce dietary inflammation with their nutritionists, usually via chat on the app. Its very new, and I got early access thanks to being a regular logger of my covid health throughout the pandemic. I did indeed find fodmap helpful, but then I had developed IBS during peri menopause as is so common. It is quite restrictive, but you soon find what sort of balance you can literally stomach. Its been a slow and steady journey, but has been good in expanding my food intake. I now try to stick to homemade yoghurt bread made with spelt - which is dead easy to make, and wonderful still warm. I also know which fruits and veg to be wary of. It has made me very interested in Japanese cuisine, which has very little in the way of dairy, thanks to higher level of lactose intolerance in asian genetics. I definitely recommend the NHS IBS pages for a start, as its free of course! Also try increasing your probiotics and variety of plants in your diet (includes seeds, beans, nuts, funghi….) so basically try simple things like swapping a mixed fruit and nut cereal for one of just wheat or corn and then its easy to up the variety. 😉

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@susantam

I have rheumatoid arthritis (and Parkinson's) and eliminated gluten and dairy a few years ago. Although it is hard to tease out cause and effect, I think my RA symptoms have improved- no significant flares and I never restarted Humira after being off during an illness 18 mos ago.
I love bread and cheese and thought this would be very difficult. There are an increasing variety of non-dairy gluten free Foods. Turns out this is not so difficult. Products I use that I find to be widely available- Earth balance for butter, many non dairy cheeses including parmesan blocks (Violife my favorite), Oat creamer is like half and half in my coffee, many gluten free pastas, dairy free yogurts- cashew yogurt (Forager) is my favorite, gluten free breads (Canyon Bakehouse 7 grain is a good staple) and crackers. I try to minimize any sugar and processed foods. I think I could improve nutritional quality and taste if I learn to bake my own bread with gluten alternative grains. Anyway, eliminating dairy and gluten is a manageable step you can take which may improve your health and quality of life, as long as you are otherwise continuing to eat a nutritious well balanced diet.

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Thank you for your response. i just started gluten and dairy free yesterday. went shopping and was pleasantly suprised how gluten and dairy free friendly this store was. literally everything i was looking for i found. i also have a app which searches for gluten free friendly restaurants. we found one that had a seperate gluten free menu. it was really good. so today will be my first full day at home eating gluten and dairy free. i am also seeing a naturapath doctor next week.

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@artist01

@eileenb1022 Hi Eileen . It's wonderful to hear your excitement over your shopping trip! Some of my gluten free friends tell me that gluten is one of the top causes of inflammation in our bodies. That's a real eye opener so it's very worthwhile to stick to the program! Your hubby too!
As a side note, I asked my Gastroenterologist if I could have the gluten test, just to verify that I NEED to go gluten free. She didn't really want me to, but relented and told me I'd have to eat at least two slices of glutinous bread per day in order to rid myself of the effects of my gluten free regime, plus whatever other gluten-type foods come up in my everyday eating. I had to do that for at least 4 weeks and then go for the blood test. I did eat what I was told to, but I have to tell you I was in real trouble with my gut within the first week.
I learned my lesson. No more gluten for me, ever.

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Good Morning Laurie,
wow thats amazing. when i first got sick 15 months ago, the ER did a catscan and it showed inflammaton in my stomach.i had no idea how it happened. six months later i had my gallbladder out and then last june a endoscope showed a form of hyperplasia with possibility of autoimmune gastritis. isee a new gi in nov and i see a naturpath dr next week. it was on facebook that people talked to me about i should go gluten and dairy free. i did a lot of research and talked to others to get ideas. so it starts today. itested neg for celiac 3 times but i have found i am able to eat some gf foods better than regular so who knows. im being re allergy tested this week also for allergies. i had some yrs ago. i used to get allergy shots .i had been fine for yrs but 6 months ago i started having these symptoms soit will be interesting what it shows. have a good day, Eileen

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@gillysmom

One more tip that may be helpful, book: Cleanse to Heal. Recommendd by a member of another group who said her inflammation symptoms were reduced considerably by following cleanse suggestions. Author, Anthony William/ I just purchased book. In past, when symptoms of swelling-inflammation-pain became sever, I would go on water fast that helped temporarily. I used distilled water. Went three days one time recently. My problem is the gamma globulin I infuse weekly aggravates the rheumatc arthritis, so I am always looking for effective ways to reduce inflammation. This last illness was a byprouct of the Moderna vaccine. Hope you find something that works. Pleaselet me know if you are helped.

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its interested you mention moderna vaccine. all my problems started 2 1/2 months after my 2nd moderna vaccine. a ct scan showed inflammation in my stomach. before i had few health problems now i have more specials ts crazy and i tire easily. i also get b12 injection and my ferritan and iron is low but i take supplements also to help.i see a naturpath dr next week. i also have a type of hyperplsia with possibility of autoimmune gastritis. been waiting untilnov to see new astro but ihave been trying hard in he meantime to help myself. i think going gluten and dairy free will help.

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