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Low Platelets with Myelodysplastic Syndrome (MDS)

Blood Cancers & Disorders | Last Active: Jan 24, 2023 | Replies (39)
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@sgt

Thankyou for your kind words, I started antibiotics yesterday but still feel very sick. I saw my blood dr last week and that’s when he told me my platelets had dropped again to 64000, he has given me a slip to get bloods every month for 6 months. But I have no idea what sort of MDS I HAVE but my platelets are dropping. So is he going to wait until they are 10,000 which is dangerously low, I have no idea. Do u know what category of MDS MOVES VERY QUICKLY.

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hlmcneely | @hlmcneely | Oct 3, 2022

I thought I would share my experience which I am grateful that my only symptoms at this time is the fatigue and the bruising. When my platelets reached 64 they had me do the bone marrow biopsy. I got the results and there were two mutations. SRSF2 gene and TET2 gene mutations. I was able to research those out to tell me my diagnosis before I went to the second oncologist specialist. His diagnosis was MDS and we are doing blood work every 2 months. Several things I could be looking at down the road, chemo is one, but for now it is watch and see. My platelets currently run from 70 - 80 with the red and white both run low. I have good days (engery) and bad days. Today I am tired but tomorrow I may feel find. Prayers for you and your health.

hollie

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