Second opinion was "maybe" he has CIDP. However, the doctor took it one step more and said that the only way to really know if you have CIDP is to stop the infusion and see what happens. He suggested, first, we go 6 weeks instead of 4 for infusion treatments. It's worth a try.
My husband experienced some nerve damage in his feet & legs from drinking. However, he was able to stop, 7 months so far, and is feeling better then ever. I should add that he had fallen several times due to weakness and balance issues. I wish you ...good luck !
My neuropathy does affect balance, but during my drinking years I had fallen numerous times with head injuries, which I’m sure didn’t help.
Reducing or eliminating caffeine and smoking I have been told reduces the numbness, pins and needles. Physical therapy really improves the balance issues.
My husband experienced some nerve damage in his feet & legs from drinking. However, he was able to stop, 7 months so far, and is feeling better then ever. I should add that he had fallen several times due to weakness and balance issues. I wish you ...good luck !
Hello @readyman1 and welcome to Mayo Clinic Connect. You will notice that I have moved your post into an existing discussion on alcohol related neuropathy, which you can find here:
- Alcohol-related Neuropathy: Anyone had good treatment results?: https://connect.mayoclinic.org/discussion/alcohol-related-neuropathy/
I see that @casey1329 and @davelobb12 have both joined you as well. What is the correlation between the psoas muscle and neuropathy that you mentioned?
I have progressive peripheral neuropathy after aggressive PT after my lumbar stenosis therapy. EMG indicate an ongoing demyelination. I requested a neurology consult but only received an e-consult by Dr.Dyck who never saw me, examined me or listened to my history. Another neurologist felt that my problems were due to pre-diabetes(HgA1C 5.8 or less with random non-fasting BS less than 110), alcohol intake(6-10 ounces of red wine every evening.
I recently requested a neurology appointment for a thorough evaluation but was denied by Mayo Neurology. I always thought that Mayo Clinic looks for difficult cases that others have given up on, but I guess that I was mistaken.
I would be grateful for any assistance in finding a provider that would be interested in doing a “thorough hands-on evaluation.
I have progressive peripheral neuropathy after aggressive PT after my lumbar stenosis therapy. EMG indicate an ongoing demyelination. I requested a neurology consult but only received an e-consult by Dr.Dyck who never saw me, examined me or listened to my history. Another neurologist felt that my problems were due to pre-diabetes(HgA1C 5.8 or less with random non-fasting BS less than 110), alcohol intake(6-10 ounces of red wine every evening.
I recently requested a neurology appointment for a thorough evaluation but was denied by Mayo Neurology. I always thought that Mayo Clinic looks for difficult cases that others have given up on, but I guess that I was mistaken.
I would be grateful for any assistance in finding a provider that would be interested in doing a “thorough hands-on evaluation.
@tymish17 - Neuropathy Commons has a list of specialists on their site here - https://neuropathycommons.org/experts-directory/us. I'm not sure how beneficial an appointment would be if you already have a diagnosis of peripheral neuropathy since there is no cure. There are a lot of different treatments that can provide relief from the symptoms though. The Foundation for Peripheral Neuropathy has a fairly comprehensive list here, including complementary and alternative treatments - https://www.foundationforpn.org/treatments/.
I have severe neuropathy in my feet and ankles. Started about 8 months ago and I am going to a pain management clinic. I tried a Neurologist and found him very dismissive and uncaring. My pain management Dr is great. I am on gabapentin as well as Cymbalta ( Duloxetine) which seems to help and has significantly brought down the pain level. Next up is a spinal stimulation procedure which we hope will block the pain sensation more. I would suggest you move on from your Neurologist and try a good pain management Dr.
I have experienced similar neuropathy issues for the last few years. Oxycodone takes intolerable feet pain down to a 5-6/10 level. However, it’s affects are diminishing and the pain clinic is recommending an implant spinal stimulation device.
I’m apprehensive about implant, and I saw your post about the same. If you pursued it I would sure appreciate you sharing your experience and recommendations, or not.
Thanks and regards from Atlanta, GA
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Second opinion was "maybe" he has CIDP. However, the doctor took it one step more and said that the only way to really know if you have CIDP is to stop the infusion and see what happens. He suggested, first, we go 6 weeks instead of 4 for infusion treatments. It's worth a try.
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Hug
1 ReactionPN from alcoholism
I’ve read that a damaged PSOAS MUSCLE results in PN?
Has anyone used “Nervogen”to treat?
My husband experienced some nerve damage in his feet & legs from drinking. However, he was able to stop, 7 months so far, and is feeling better then ever. I should add that he had fallen several times due to weakness and balance issues. I wish you ...good luck !
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Like -
Helpful -
Hug
4 ReactionsMy neuropathy does affect balance, but during my drinking years I had fallen numerous times with head injuries, which I’m sure didn’t help.
Reducing or eliminating caffeine and smoking I have been told reduces the numbness, pins and needles. Physical therapy really improves the balance issues.
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Hug
3 ReactionsHow much drinking are we talking about?
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1 Reaction16 0z. of whiskey every night, not including wine & beer...it was killing him.
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4 ReactionsHello @readyman1 and welcome to Mayo Clinic Connect. You will notice that I have moved your post into an existing discussion on alcohol related neuropathy, which you can find here:
- Alcohol-related Neuropathy: Anyone had good treatment results?: https://connect.mayoclinic.org/discussion/alcohol-related-neuropathy/
I see that @casey1329 and @davelobb12 have both joined you as well. What is the correlation between the psoas muscle and neuropathy that you mentioned?
-
Like -
Helpful -
Hug
3 ReactionsI have progressive peripheral neuropathy after aggressive PT after my lumbar stenosis therapy. EMG indicate an ongoing demyelination. I requested a neurology consult but only received an e-consult by Dr.Dyck who never saw me, examined me or listened to my history. Another neurologist felt that my problems were due to pre-diabetes(HgA1C 5.8 or less with random non-fasting BS less than 110), alcohol intake(6-10 ounces of red wine every evening.
I recently requested a neurology appointment for a thorough evaluation but was denied by Mayo Neurology. I always thought that Mayo Clinic looks for difficult cases that others have given up on, but I guess that I was mistaken.
I would be grateful for any assistance in finding a provider that would be interested in doing a “thorough hands-on evaluation.
-
Like -
Helpful -
Hug
3 Reactions@tymish17 - Neuropathy Commons has a list of specialists on their site here - https://neuropathycommons.org/experts-directory/us. I'm not sure how beneficial an appointment would be if you already have a diagnosis of peripheral neuropathy since there is no cure. There are a lot of different treatments that can provide relief from the symptoms though. The Foundation for Peripheral Neuropathy has a fairly comprehensive list here, including complementary and alternative treatments - https://www.foundationforpn.org/treatments/.
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Like -
Helpful -
Hug
3 ReactionsI have experienced similar neuropathy issues for the last few years. Oxycodone takes intolerable feet pain down to a 5-6/10 level. However, it’s affects are diminishing and the pain clinic is recommending an implant spinal stimulation device.
I’m apprehensive about implant, and I saw your post about the same. If you pursued it I would sure appreciate you sharing your experience and recommendations, or not.
Thanks and regards from Atlanta, GA
-
Like -
Helpful -
Hug
3 Reactions