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Low Platelets with Myelodysplastic Syndrome (MDS)

Blood Cancers & Disorders | Last Active: Jan 24, 2023 | Replies (39)
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@sgt

Hi sue, Thankyou for your reply. I have had MDS for about 18 months, my specialist hasn’t said a great deal more. It is a blood cancer and I have only just come to the realisation that I’m very sick. I haven’t told my children yet, they will not cope very well with this news. I have been too sick to see them lately and don’t know when to tell them.

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Replies to "Hi sue, Thankyou for your reply. I have had MDS for about 18 months, my specialist..."
Sue, Volunteer Mentor | @sueinmn | Oct 1, 2022

I'm sorry to hear that you haven't shared this diagnosis with your children. I think perhaps you could use their support, and maybe their help. While MDS isn't "curable", it can be managed to give you a better quality of life.
Have you read what Mayo Clinic has to say about diagnosis & treatment?
https://www.mayoclinic.org/diseases-conditions/myelodysplastic-syndrome/symptoms-causes/syc-20366977

Let's call out to my friend @loribmt, who has dealt with blood cancer, to see if she has any thing to add.
Sue

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