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@pcondon

Sally...did you get my reply? JELMYTO I do not see my reply posted. Still learning how to use this network. KEEP me informed please after you talk to the second doctor. We need to share because there is do little information available . I am concerned about side effects.

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Replies to "Sally...did you get my reply? JELMYTO I do not see my reply posted. Still learning how..."

I see this reply but not a prior one. I will post info after my appointment on Monday with the dr that I have been referred to for the Jelmyto treatment. I have at least 25 questions written down to ask him about the actual procedure and side effects. I DID find out that UNC Chapel Hill, NC (The hospital) has a Urologist with Jelmyto experience. If I’m not comfortable with the dr that I see on Monday, I will make an appointment with the UNC dr. It’s a 2 hour drive for me, but would be worth saving my kidney to have someone with experience. I will post here any information I can to help fellow cancer patients.