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Myxofibrosarcoma: What treatments did you have?

Sarcoma | Last Active: Oct 7 12:35pm | Replies (104)
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@4me

Thank you for sharing your journey. I am sorry to hear what you have had to endure.
That must be so difficult everytime you go to eat and the trouble you go through.
I have never heard of your cancer either.
There are just far too many rare cancers
I am so sorry you have to continue to go through more surgeries.
How did you find out about your cancer?
When where you diagnosed?
Have you found anyone else with your cancer?
Do you belong to a support group?

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Replies to "Thank you for sharing your journey. I am sorry to hear what you have had to..."
Teresa, Volunteer Mentor | @hopeful33250 | Sep 30, 2022

Hi @4me,

My NETs were found incidentally. A test to look at something else revealed the lesion. Before my third surgery, I found Mayo Connect Prior to that it was hard to find information or support.

Actually, I've adjusted to the eating plan. I simply eat smaller, more frequent meals now. I've gotten used to it.

Mayo Connect is my main support group.

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