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Low T-Cell - Bone Marrow Biopsy
Blood Cancers & Disorders | Last Active: Nov 15, 2022 | Replies (162)Comment receiving replies
Hi @loribmt , I also very wish you could be a fairy god mother and wave your magic hand to have all of my symptoms gone - but you're doing a lot already! I read through the link, thank you! It does mention CD8 only not CD4, and I am still confused why doctors do not seem to think at all about EBV since the PCR was always negative even when my antibody were positive for reactivation. I am still waiting to get all my blood tests so I can have a narrow timing in which years it happened. I would really like to be a spy and understand what is causing my heart distress and if that's linked to my current illness. On the symptoms side, the heart is the same, pretty bad moments that are frightening, after a few steps - it's so high and the throat/stomach feels tight. This is soooo scary and I feel like I will die and my heart stop, I cant explain. On the probiotic side, I have started it a week ago and it makes my stomach and salivary gland a bit acting might be that it's killing the bad bugs? Anyway, thank you for the encouraging words, I hope I will get through this, you are the strong one! I find it extremely hard to be alone. On the good thing, tomorrow I have my energy healing / therapy session and that would help, I ordered sexy compression socks (in acase its POTS) and will try to enjoy a bit the weekend while taking ativan :S Grape juice is a good alternative hehehe but its definitely not like having a great glass of wine - were you a wine lover beforehands? I am impress by you and how resilient you are.
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Good morning, Maria. I know you’re going to get through all of this!!! ☺️ There’s a little inspirational message I read early on in my journey: “We never know how strong we are until strong is the only option.” That message, along with a couple others still resonate with me and empower me any time I’m feeling a little less than capable.
It’s so important to continue to feel hopeful and to have a positive attitude when things look bleak. They usually never turn out as bad as we imagine! It’s amazing what that positivity can do when we start looking for that glimmer of light at the end of the tunnel and the first thought isn’t that of a train headlight speeding towards us. 🙂
I know you possess this ability of strength and resilience too! I pick this up from your writing. You still have a sense of humor and you’ve not given up. That’s a fighter.
So, put on those sexy compression socks and see if they help keep you vertical. 🙂. I have to wear those socks too, if I’m in any situation that requires lengthy standing. Mine are a pretty cool pink…sporty. Then a black dressier pair and some in blue. They really do work!
Wine…yes, I loved a glass of wine during ‘happy hour’ before my husband and I have dinner. There’s still a happy hour but mine doesn’t involve alcohol…just ‘wine before it’s time.’ LOL. Though I did have 2 ounces of an incredible white wine from France that my friend served at dinner the other night. It was served in a wine glass over a huge amount of ice. So it was pretty diluted but I could appreciate the taste. My walk on the wild side. Haha.
Hope you’re having a good weekend. Hugs.