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Von Willebrand disease

Blood Cancers & Disorders | Last Active: Oct 28, 2022 | Replies (5)

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@loribmt

Hi @ashleygt, Welcome to Mayo Clinic Connect. Aw, I’m so excited for both you and this child you’re bringing into your family. It’s wonderful to see such a positive story.

Von Willedbrand Disease is a blood clotting disorder that’s inherited. It’s managed with medication and can be more problematic if female due blood loss from their menstrual cycle. Being a male that is removed from the equation.
I found information on the Mayo Clinic Website regarding Von Willdebrand Disease and another from Cleveland Clinic. I’ve posted those sites below. They both describe diagnosis and treatment for this blood disorder. The most common treatment to help counteract the condition is using specific hormones to help balanced the Von Willdebrand hormone in the body.
https://www.mayoclinic.org/diseases-conditions/von-willebrand-disease/symptoms-causes/syc-20354978
https://my.clevelandclinic.org/health/diseases/17709-von-willebrand-disease
We do have a few discussions in our Connect forum regarding this condition but they are also correlating with other bleeding disorders. Some are directly related to VWD and some are for platelet conditions. I wasn’t sure which were relevant and didn’t want to overload you with information that might not be pertinent to your child’s situation. So I felt these two sites were a good place to start.
Most people seem to discover they have this condition later in their lives after having spend many years with bleeding issues. So to know early on can be a real benefit for starting treatment.
Best wishes on your fostering and hope it leads to an adoption for you!
The best person to discuss this with is a hematologist. They specialize in blood disorders. Have you spoken with a hematologist yet?

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Replies to "Hi @ashleygt, Welcome to Mayo Clinic Connect. Aw, I’m so excited for both you and this..."

Thank you. As of right now, all we know is that he has it. He's 13. So this will be very helpful. The other forums may help more once we have more specifics. Thanks again, we appreciate all the help