Hello, my name is Ally, I know your post is old, but I'm having all these issues right now, I have lupus and a heart murmur, but can't figure out if they're what's causing the issues. Today my bones hurt and I feel physically weak in them.
I have no idea what doctor I should see or anything, how did everything go for you, is this something I should be worried about or should I just wait a few weeks for it to pass and move on/forget it?
(The only difference I see in your post and me is the fact that I've never been able to breathe properly growing up, I'm 18 now, but still can't. I don't lose my breath or anything, but I've only ever been able to take light breaths and basically hold them until I can't, I have no rhythm and even simple breathing exercises hurt. I can't do deep breaths , they get stuck and my heart pinches and feels stuck.)
All the doctors I've told this to just blow it off and/or say that I just didn't learn to breathe properly??
But I KNOW how, I just physically can't.)
I'm afraid I'm going to go in and they're just going to say it's anxiety &panic attacks again. But they're NOT I know the difference between when I'm having them and this.😓
Did they ever figure out what you were struggling with?
Have you considered seeing chest physician therapist? There are PT’s who specialize in treating patients with chest issues like cystic fibrosis and emphysema. They might be able to assess your pulmonary status? I presume you’ve seen your pediatrician and discussed this with them? Have you seen a pulmonary physician?