@ognj Good Morning ! Glad you "jumped" in. Appreciate the conversation/thoughts about my newest journey. Prayers for your Dad and his continued treatment. Keep us posted.
Of the common symptoms listed......the only one I can relate to is the consistent numbness in my feet from ankle down. I haven't had weight loss (although I need to lose some pounds) or any of the others listed.
Waiting "patiently" LOL for word from MDA Myeloma team on how to proceed.
I may have mentioned, I live in Spring Branch, north of San Antonio. I still go to MDA Houston annually for mammogram and OV with Cancer Prevention team. Also have endocrinologist that does my bone density bloodwork EOY. Bloodwork from last visit 2/2022 showed high calcium level (a symptom). She suggested I stop taking my calcium supplement and repeat the blood work in 6 months. Fast forward to Aug. 30, 2022 I had my semi-annual visit with my PCP and she ordered routine blood work. Quest suggested on report that I have a "serum immunofixation" test. I had additional blood work done 9/19/2022 for this. Their IFE Interpretation was - IgG lambda monoclonal band present. PCP suggested I see a hematologist.
So, since I had already been a patient at MDA since 2006 (transferred from Clear Lake area Doctors.). I thought I would be able to get "in" much sooner than being a new patient at UT Health San Antonio MDA. Unfortunately MD Anderson and San Antonio MDA branch "systems don't MESH"; therefore, I would be considered new patient.
We are from the Houston area originally and still own a house there (our daughter lives in it), it's a no brainer to go there for testing/diagnosis.
I just happened upon these Mayo discussions and hopped in. I presume most of those chatting are Mayo patients, but situation/treatment/diagnosis are common among us.
It is so comforting to have those that have been down this path already either personally or with family member to chat with. When I was diagnosed with breast cancer at age 47 in 1998, I felt so alone as no one I knew had similar experience. But I soon found out they were there, they just weren't talking.
Enjoyed your comments about your Dad, please keep us up to date in his journey.
I was comforted immediately by @gingerw posting her thoughts right away.
Crossing my fingers, that since my foot is already in the MDA door, I can get appointment for evaluation/blood work soon.
Thanks again to @ognj and @gingerw for your comments.
Talk soon !! Jackie
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@redgiles thank you for your thoughtful reply.
My parents are in NJ & have been getting testing locally. This is the first time it has escalated to potentially being more, so we’ll see where we end up for further care based on Fridays none marrow test. I stumbled on this message board as well, just about a week ago, but it’s been very helpful to read through. All the best to you.