Connect
← Return to Myxofibrosarcoma: What treatments did you have?
Discussion
Myxofibrosarcoma: What treatments did you have?
Sarcoma | Last Active: Feb 23 10:42am | Replies (111)Comment receiving replies
Hi Jonezzi
I also was diagnosed with Myxofibrosarcoma high grade tumor in my right lower calf.
I have had 2 surgeries.
During the 2nd surgery I also had radiation on my leg before the plastic surgeon did my skin graft.
Then I had an additional 6 weeks of radiation.
Which played havoc on my skin graft.
But happy to say that is done and my skin graft has healed. I was told chemo did not work on Myxofibrosarcoma by UCSF Stanford and UCD.
I have had 4 opinions.
Where was your tumor located.
It is very difficult to find someone with our cancer.
Looking forward to hearing from you.
4Me
Replies to "Hi Jonezzi I also was diagnosed with Myxofibrosarcoma high grade tumor in my right lower calf...."
I was diagnosed August of 2018. I had surgery and radiation and a skin graft on my forearm. I was also told that Chemo would not touch it. I had stage 3 high grade.
I had radiation first then surgery. had a large tumor in thigh and was high grade checking on lungs now as that is where this type sarcoma likes to go. Have some nodules , checking in 3 mo's to see if they are growing.
The dr's told me no chemo
I am getting second opinion on what should be done going forward.
Connect
Hello 4Me, thank you for your reply. I had a high grade tumor which was located on the left lateral chest wall right under the arm pit. I completed 2 surgeries they removed tumor and some of the latissimus muscle. I am currently going through a 6 weeks radiation treatments at this time.
I also heard the chemo is usually not as a treatment with this type of sarcoma but my oncologist stated they would also like to treat it with chemo. Searching for anyone else being treated chemo as a option.