← Return to New and undiagnosed

Discussion

New and undiagnosed

Lung Health | Last Active: Dec 12, 2023 | Replies (131)

Comment receiving replies
@yvonne55

This last session was a nightmare! Our local hospital didnt know what to do. So I was intubated, and sent to another hospital 2 hrs away where the specialists are. I was on full life support when I arrived. I've had ct tests, heart tests, kidney ultrasounds and a bronchoscopy. Nothing concrete is showing except this ground glass thing. I'm back in my home hospital now and the 2 litres of oxygen I was on they took away. My sats are 89 and the doctor said walk walk walk. With sats of 89? They took my commode away so I have to go across the room to the bathroom with sats of 89? No one ....is listening. The night before I crashed I was making salad. Heart rate went over 140. Hours later I'm in an ambulance again. I cant do this again.

Jump to this post


Replies to "This last session was a nightmare! Our local hospital didnt know what to do. So I..."

Talk to your specialist. I was doing cardio rehab this summer (following a stent) and my oxygen levels dropped below 90. They called my Pulmonologist who said if they go below 88 give her oxygen but is fine with 88,89 during exercise. And I did 35 sessions. like that. Since I have lung cancer, I wanted to track my stats carefully. I am fine with some exercise but once I get to "moderate" or 4 METS my oxygen levels drop below 88. They had me do alternates that is 4 min at slower speed and 1 minute at higher speed which worked. At home my oxygen is just fine but with exertion it goes down. I know this some manage accordingly. My Pulmonologist said the same thing WALK WALK WALK. And wearing an N95 mask is really hard on me. In cardio rehab I had to use a lighter mask.