← Return to possible Myeloma ? big shocking surprise !!

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@gingerw

@redgiles Jackie, understandably, they want to review their own labwork done on their own machines. I have labs pulled at Quest for some things, but my cancer center also does their own set [different labs, different values] so it is consistent within their own records.

I can say that MGUS is almost always the first step. The key values are watching the "M" proteins levels. And usually a bone marrow biopsy to determine if/how much involvement there is from there. Many times it is a "watch and wait" situation. In my case it was unusual to progress so fast, and I tell people that I am an overachiever, and couldn't be held to standard guidelines!
Ginger

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Replies to "@redgiles Jackie, understandably, they want to review their own labwork done on their own machines. I..."

Hi. I hope it’s ok to jump in on this thread. @redgiles i admire your strength & pro-active approach & wish you all the best.
@gingerw - my father has a (2nd) bone marrow test in 2 days. His iGg, K/L ratios & m protein (0.48) have elevated since fall. All the MM articles I’ve read list bone pain & breaks / fractures as the primary symptoms. He hasn’t had these so I’ve felt some relief. The article you posted is the first I’ve seen that also lists weight loss, fatigue , confusion & thirst as symptoms. My dad has all of these- he lost 65 pounds in the last year. His hematologist/ oncologist specifically commented last week that weight loss is rarely a precursor for MM. can you comment on this, as well as how confusion may appear with this dx? Not jumping the gun, as I realize the BM test will be telling but now it feels his symptoms may be more aligned than I initially thought, so trying to get clarity as we wait. Thank you so much.