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possible Myeloma ? big shocking surprise !!

Blood Cancers & Disorders | Last Active: Nov 18, 2022 | Replies (30)
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@redgiles

@gingerw

Thanks for your quick response to my post. Very informative. Of all the symptoms on the list - I don't exhibit any of them except numbness/tingling in my feet most of the day and high levels on some of the bloodwork. I had a neuropathy test in past few years, that was negative at that time.

This condition was only discovered through routine blood work. I am hoping it is only MGUS !

What particular test/bloodwork determines if I have MGUS or MGUS/SMM ??

My endocrinologist at M D Anderson Houston wants to repeat the Quest Labs and refer me to their Myeloma dept. I have asked her to get that appointment for me. I guess they will run the lab work to determine the "stage" of this condition.

So....at this moment I am waiting for reply to my message to MD Anderson last night about referral.

Thanks again for your very informative reply. I'll post as I proceed down the "path" to diagnosis.

Jackie

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Replies to "@gingerw Thanks for your quick response to my post. Very informative. Of all the symptoms on..."
Ginger, Volunteer Mentor | @gingerw | Sep 27, 2022

@redgiles Jackie, understandably, they want to review their own labwork done on their own machines. I have labs pulled at Quest for some things, but my cancer center also does their own set [different labs, different values] so it is consistent within their own records.

I can say that MGUS is almost always the first step. The key values are watching the "M" proteins levels. And usually a bone marrow biopsy to determine if/how much involvement there is from there. Many times it is a "watch and wait" situation. In my case it was unusual to progress so fast, and I tell people that I am an overachiever, and couldn't be held to standard guidelines!
Ginger

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jjtex | @jjtex | Oct 14, 2022

Hi Jackie,

Biggest congratulations and much admiration on two decades of crushing breast cancer.

I just saw this but want to let you know I live in Spring, and am happy to help in ANY way when you come to Houston and MDA.

I was treated for Stage IV colon cancer at MDA (but my surgeons consulted with Mayo docs on my messed-up labs!), and I was on a surgical stepdown floor with some advanced breast cancer patients. This was due to COVID crowding, but I’m forever grateful because we all helped each other through some rough things.

Feel free to email me directly.

BTW, my mom worked at JSC for 30 years so very familiar with Clear Lake.

Jen

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