1. < Infectious Diseases

Bartonella / Lyme

Posted by mikeg0822 @mikeg0822, Sep 26, 2022

Hello,
I am experiencing severe neuropathy in both feet. I’m currently on my 6th month of herbal treatment for a positive Bartonella test, which is a form of Lyme disease, along with B12 deficiency. Does anyone have a similar story?

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trishh | @trishh | Sep 27, 2022

@Mikeg082
Yes, I had Lyme, bartonella, babesia, and another with "h" I believe back in 2000. Finally diagnosed after so many years. Was a Park Ranger in college. But was terribly sick and started treatment but got neuro Lyme and pain started in feet. They were purple 💜
Sent to pain doctor and diagnosed with a severe neuropathy.
Years have passed but have chronic Lyme now and small fiber neuropathy.
Hope this helps. You are not alone.

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1 reply
baileyladdie | @baileyladdie | Nov 12, 2022

Hi what are you doing now to help your fiber neuropathy? I developed SFN they are saying it is Bartonella and lyme I am being treated for it now. Have no idea how long I had it. Going to an Ingregrated Doctor who says I have it and other Doctors are saying no . I have no other choice as I am in great pain.

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baileyladdie | @baileyladdie | Nov 12, 2022

Yes I do. Started with raynauds progressed now SFN in feet and face hands. Going to a Intragrated docotr I was low in B also on supplements they are treating me with antibiotics. So much pain and can not sleep. Conflict with Doctors Intragrated Doctor says I have it and other Doctors quesionable.But what are my options Can not take that Gabapentin thought I was going to have to go to emergency Took one pill Do not know what to take can not sleep ringing in my ears.

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nele984 | @nele984 | Jan 9, 2023

I also thought that my SFN was due to Bartonella but it apparently wasn't. I mean treatment for infection never helped for my SFN...it's only getting worse. My feet are gonna explode because of pain, muscle twitching is insane and tinnitus also. I don't know how to live.like this anymore...

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pitou | @pitou | Jan 22 7:05pm

I’ve had chronic Lyme for 25 years & painful neuropathy, in my feet, for about 20 years. Any input/help is appreciated.

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mzucca | @mzucca | Mar 11 12:30pm
In reply to @trishh "@Mikeg082 Yes, I had Lyme, bartonella, babesia, and another with "h" I believe back in 2000...." + (show)
@trishh

@Mikeg082
Yes, I had Lyme, bartonella, babesia, and another with "h" I believe back in 2000. Finally diagnosed after so many years. Was a Park Ranger in college. But was terribly sick and started treatment but got neuro Lyme and pain started in feet. They were purple 💜
Sent to pain doctor and diagnosed with a severe neuropathy.
Years have passed but have chronic Lyme now and small fiber neuropathy.
Hope this helps. You are not alone.

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My understanding is now this falls under CIRS/SIRS syndrome... Do you know anything about new treatments?

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