I have been on revlimid 25mg and dexamethasone steroids for over 1 year and will have my stem cell transplant next week. (No gout meds or anti ant acids).

Your Mom is experiencing many of the common side effects. I found the steroid to be the most challenging at first.( i.e. shakes, insomnia, crash at end of the week).

I also suggest speaking with her hematologist regarding the side effects. I was able to adjust the timing and amount of steroid taken. ( we spread the dose out over the week instead of taking all at once at the beginning of the week.) This made it more manageable.

I found my body was able to adjust over the first couple of months and the effects were more manageable. She may experience a slight rash after the first or second cycle of revlimid as well. Common but should be reported asap so they can manage as well.

I hope your Mom is able to get the same relief that I was able to achieve while taking the medication. The boost of energy and end of week fatigue is pretty standard for me with some weeks being better than others. I hope she also is able to achieve remission of the myeloma as I have from this course of treatment.

I am glad she has you supporting her thru her journey as well! Let me know if I can assist in any other way with shared experiences. Thoughts and Prayers to your family!

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