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@thunderseed

Hey so I had low b12 and somewhat low iron. They thought it was causing my symptoms (all over body pins and needles, internal tremors and muscle spasms).
So I took high doses of b12 twice daily, and also took a multi vitamin in case I was deficient in other things.
And I felt like my pins and needles were getting better. At least I was able to sleep at night and some nights the pins and needles were very mild. But I still had mild internal tremors/ vibrations.

Not long after my symptoms changed and I experienced fatigue and weakness along with internal tremors /shaking but my pins and needles remained mild.
New bloodwork revealed my b12 was now very high and my iron was now on the low end of an optimal range.

So i started taking iron (which I thought was responsible for alleviating my weakness the first two days, but it could have been something else that I was doing too for example I also started electrolytes and just eating a well balanced meal with the iron and it seemed to stop my abnormal fatigue and weakness). But each morning I’d again wake up weak.

And I stopped taking high doses of b12 because my blood work read high in it, and just took the multivitamin instead, but the same night my pins and needles came back worse.

And my doctors are no help. So I guess I’m just wondering is the fact my b12 is now high from taking high doses every day mean that my liver has finally absorbed enough? Should I assume I’m no longer deficient in it??? Or could the b12 vitamins I took that day just been in my blood without actually storing in my liver, and thus making the high reading in the blood test not accurate ?
And since my vitamin b12 blood levels are high now, i should assume I’m absorbing vitamins just fine???
And if it’s high should I still take high dose of b12?
Because I thought I could stop yet my symptoms came back fast. Is maybe my body depleting my vitamin stores really fast or something?

I’m not even sure if vitamin deficiency is causing my symptoms maybe it was just a coincidence my symptoms seemed to get better when I started taking them.
But my doctors have never explained to me how this works.
They told me to take high doses of b12 for a month. Yet it’s been less than that and it’s reading high.

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Replies to "Hey so I had low b12 and somewhat low iron. They thought it was causing my..."

Hi @thunderseed, your posts fits well with this existing discussion where you can connect with other members dealing with vitamin B12 deficiency.
- How did you get help with Vitamin B12 Deficiency Recovery? https://connect.mayoclinic.org/discussion/vit-b12-deficiency-recovery/

You might also be interested in this related discussion since you mention pins and needles:
- Vitamin B12 deficiency and small fiber neuropathy Vitamin B12 deficiency and small fiber neuropathy

From my understanding, to accurately test for b12 serum you need to be off of b12 supplements and b vitamin drinks for at least 4 months (the average life of a red blood cell) . There are other tests to be ran too, but there is no gold standard test. Plus, there is research that the "normal" cut off of above 200 is too low, especially if neurological symptoms are present. Additionally the basic b12 serum test doesn't really tell what's actually getting to your body at a cellular level. Have you heard of the book Could It Be B12? I listened to it for free thru my local library and the free app Hoopla. You can also watch the free movie Sally Pacholok on YouTube. She also has a website. From my understanding, if you have neurological symptoms you need every other day b12 injections until symptoms improve. I am going thru similar issues of buzzing and tingling in my leg. I am also getting the run around in doctors. I have lots more to say on this. But I'll stop here while you have time to process and research what I've said. I've learned I have to advocate and fight for my life.