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Essential Thrombocythemia: Looking for information and support

Blood Cancers & Disorders | Last Active: Nov 4 11:06am | Replies (597)
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@kathy5brothers

I Linda. I also have ET and have been on Hydroxyurea for over 20 years as well.
Lately it has been playing havoc with my blood counts. My platelets are way down, and my white count and hemoglobin too.

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Replies to "I Linda. I also have ET and have been on Hydroxyurea for over 20 years as..."
nohrt4me | @nohrt4me | Sep 29, 2022

I've been on HU, 500/day + extra 500 on M/W/F for four years. Next hemo appt in a couple weeks. Suggestions for questions I can ask about long-term HU side effects? Thanks!

P.S., Dad had ET also. He had foot ulcer that I think was likely a side-effect, but he was on very high HU doses, maybe up to 2,000 mg/day because platelets were well over 1,000.

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