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Middle Ear Myoclonus and Neuropathy

Ear, Nose & Throat (ENT) | Last Active: Sep 13, 2023 | Replies (15)

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@willows

Liz, wish I could help. You have not mentioned whether you are currently on any medications and if so, which ones. I have very loud tinnitus all the time. Some days the tinnitus causes my back, legs, and soles of my feet to buzz, as though an electrician current is going from my brain all the way down to the floor. This sensation I associate with the tinnitus which affects the brain. The pain and sensitivity I associate with my hyperacusis. The tinnitus is permanent and at present there is no help for it. I will continue to ring and buzz for the rest of my life I guess. As I get deafer the hyperacusis doesn’t bother me as much and habituation helps control it and reduce the pain. I take both pregabalin and amitriptyline twice a day and it seams to give me a small improvement in the tinnitus. I know some people are afraid to try these drugs, and I get it. For me, I am at the stage that anything that will help to reduce tinnitus is welcome and the lesser of the two evils so to speak.

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Replies to "Liz, wish I could help. You have not mentioned whether you are currently on any medications..."

I am so sorry about your symptoms. I’ve noticed I started to develop a ringing sound that comes and goes. It scares me to have to deal with yet another symptom on top of all the ones I’m already dealing with. I am not taking any medications at the moment, only taking magnesium but that does not seem to help.

Hi Willows, it could be worth asking your doctor about Multiple Sclerosis, I have read that an electrical feeling in the back is common for people with MS.