"When the worst happens, we deal with it at the time. Worrying about what, when or how (the unknowns) just robs us of so much mental space that could go for positive affirmations!" So ironic you say that; my wife and sister keep telling me something to that effect as well.
I definitely could benefit from a reprogramming of my thought processes. Your message is very inspirational and appreciated! Thank you so much.
"When the worst happens, we deal with it at the time. Worrying about what, when or how (the unknowns) just robs us of so much mental space that could go for positive affirmations!" So ironic you say that; my wife and sister keep telling me something to that effect as well.
I definitely could benefit from a reprogramming of my thought processes. Your message is very inspirational and appreciated! Thank you so much.
@nhlbob “So ironic you say that; my wife and sister keep telling me something to that effect as well”.
Your comment made me giggle a little because what does that tell you??
Listen to the women in your life! 😂
I am an87year old male. I was just diagnosed with Mantel Cell Lymphoma and Chronic Leukemia at M D Anderson. Just had a needle biopsy, PET scan and will get a CT scan with contrast tomorrow morning.
I will not start treatments for a few days until all of the tests are completed.
My chemo treatment is 2-part: A and B. They alternate every 3 weeks until I have had 3 of each. Part A is done as an out-patient but takes 7-9 hours. I have to stay in the hospital for 3 days when I have Part B. I am not a patient at Mayo, so I don't know how they do it.
Part A:
Cyclophosphamite
Doxorubisin
Viacristine
Rituxin
Thanks for your information. I was just diagnosed with MCL and CCL at the age of 87. I am awaiting a meeting with the Oncology team at M D Anderson to discuss the treatments and schedules.
Thanks for your information. I was just diagnosed with MCL and CCL at the age of 87. I am awaiting a meeting with the Oncology team at M D Anderson to discuss the treatments and schedules.
Hi, I’m sorry to hear about your diagnosis. Do yo mean CLL?
I also go to M D Anderson for polycythemia and chronic anemia. Please keep us posted regarding your treatment. Take care, you’re in good hands.
Hi, I’m sorry to hear about your diagnosis. Do yo mean CLL?
I also go to M D Anderson for polycythemia and chronic anemia. Please keep us posted regarding your treatment. Take care, you’re in good hands.
@nhlbob “So ironic you say that; my wife and sister keep telling me something to that effect as well”.
Your comment made me giggle a little because what does that tell you??
Listen to the women in your life! 😂
Good morning, @nhlbob, Happy New Year! I haven’t checked in with you for a while. The last time we talked you were going to be trying IVIG treatments for 4 months. Any improvement? How have you been feeling?
My husband was recently diagnosed with mantle cell lymphoma. He is 66 and otherwise in good health. He had a three day Infusion In the hospital, we see his oncologist tomorrow, hopefully numbers went down. He is very tired and his blood pressure is low. Can anyone share if this has happened to you? Thank you
My husband was recently diagnosed with mantle cell lymphoma. He is 66 and otherwise in good health. He had a three day Infusion In the hospital, we see his oncologist tomorrow, hopefully numbers went down. He is very tired and his blood pressure is low. Can anyone share if this has happened to you? Thank you
Hi @arbutus, while we’re waiting for other members to reply about their experiences with Mantle Cell Lymphoma, could you tell me what infusions your husband received?
There are several possible treatments so it might be helpful to know the name to see if others had the same medication.
It’s not unusual after chemo infusions for blood numbers to drop along with the cancer cells. Those treatments often target fast growing cells. Unfortunately they don’t differentiate and so blood cells, along with cancer cells involved. The effects are usually felt around 7-10 days after treatment with fatigue and weakness. Once the blood numbers start regenerating, especially the white blood cells, then he should feel a little perkier.
I hope he gets good news at the oncologist tomorrow! Will you let me know please?
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"When the worst happens, we deal with it at the time. Worrying about what, when or how (the unknowns) just robs us of so much mental space that could go for positive affirmations!" So ironic you say that; my wife and sister keep telling me something to that effect as well.
I definitely could benefit from a reprogramming of my thought processes. Your message is very inspirational and appreciated! Thank you so much.
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1 Reaction@nhlbob “So ironic you say that; my wife and sister keep telling me something to that effect as well”.
Your comment made me giggle a little because what does that tell you??
Listen to the women in your life! 😂
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2 ReactionsI am an87year old male. I was just diagnosed with Mantel Cell Lymphoma and Chronic Leukemia at M D Anderson. Just had a needle biopsy, PET scan and will get a CT scan with contrast tomorrow morning.
I will not start treatments for a few days until all of the tests are completed.
Thanks for your information. I was just diagnosed with MCL and CCL at the age of 87. I am awaiting a meeting with the Oncology team at M D Anderson to discuss the treatments and schedules.
@shirlpat
Hi, I’m sorry to hear about your diagnosis. Do yo mean CLL?
I also go to M D Anderson for polycythemia and chronic anemia. Please keep us posted regarding your treatment. Take care, you’re in good hands.
Yes, I meant CLL. I am scheduled for a Wide Neck Dissection on The 29th of
September on several lymph nodes on my left side in the cervical area.
@shirlpat
Hi @shirlpat, just a quick note to let you know that I'm thinking of you as you prepare for the neck dissection this coming week.
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1 ReactionGood morning, @nhlbob, Happy New Year! I haven’t checked in with you for a while. The last time we talked you were going to be trying IVIG treatments for 4 months. Any improvement? How have you been feeling?
My husband was recently diagnosed with mantle cell lymphoma. He is 66 and otherwise in good health. He had a three day Infusion In the hospital, we see his oncologist tomorrow, hopefully numbers went down. He is very tired and his blood pressure is low. Can anyone share if this has happened to you? Thank you
Hi @arbutus, while we’re waiting for other members to reply about their experiences with Mantle Cell Lymphoma, could you tell me what infusions your husband received?
There are several possible treatments so it might be helpful to know the name to see if others had the same medication.
It’s not unusual after chemo infusions for blood numbers to drop along with the cancer cells. Those treatments often target fast growing cells. Unfortunately they don’t differentiate and so blood cells, along with cancer cells involved. The effects are usually felt around 7-10 days after treatment with fatigue and weakness. Once the blood numbers start regenerating, especially the white blood cells, then he should feel a little perkier.
I hope he gets good news at the oncologist tomorrow! Will you let me know please?
-
Like -
Helpful -
Hug
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