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DiscussionCholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?
Liver Cancer | Last Active: 1 day ago | Replies (202)Comment receiving replies
Replies to "@reddino, that's tough news to get that the cancer has spread. @billdemarco and @tball3748 can share..."
I have recently started an immunotherapy treatment as radiation and chem was not effective.
@reddino
I did not get a copy of what you had said about your cancer
I haven’t had any spread nor Whipple, so I can’t comment on that. I do know to be your own advocate, ask lots of questions, research, get 2nd opinions and reach out to groups like the Cholangiocarcinoma Facebook patient groups for info. I’ve been on chemo for a year, had the genetics test and treated well w/FGFR2 mutation drug Pemazyre until side effects trumped my progress. Keep your thoughts positive, continue to try new meds. We can fight this beast!