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POTS - postural orthostatic tachycardia syndrome
Heart Rhythm Conditions | Last Active: Dec 12, 2024 | Replies (57)Comment receiving replies
I have several autoimmune conditions. Crohns, psoriasis, and P.O.T.S. Last night I experienced a new sensation. My heart was not racing. But I felt like I was having inner tremors with no outer manifestation. I am taking Propanfanole for the condition to lower my heart rate. Everything I did was like aerobic exercise.
I am not real tech savvy. I couldn’t figure out if there is a group for my condition.
I am 75 years old. Unstable walking. Good spirits. Thankful for life. Just wish I could be more active. Need better sleep. This sensation strong enough to keep me awake.
Replies to "I have several autoimmune conditions. Crohns, psoriasis, and P.O.T.S. Last night I experienced a new sensation...."
Thank you so much for your assistance!
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Hi @teddi, discussions about POTS (postural orthostatic tachycardia syndrome) can be found in the Heart Rythym Conditions group (https://connect.mayoclinic.org/group/heart-rhythm-conditions/). I moved your message to this existing discussion that @julianned started
- POTS - postural orthostatic tachycardia syndrome https://connect.mayoclinic.org/discussion/pots-postural-orthostatic-tachycardia-syndrome/
I did this so that you can read the previous helpful posts and connect easily with fellow members living with POTS like @tct @faithshouse @jenn54 @gailanne @c130 @jobby99 and others.
Teddi, you mention that the racing heart and inner tremors prevent you from getting a good night's sleep. I wonder if the tips shared in this related discussion might be helpful for you:
- Body vibrations when falling asleep or waking? https://connect.mayoclinic.org/discussion/body-vibrations/
To help stabilize yourself, do you use a cane or walker?