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Cerebral amyloid angiopathy

Stroke & Cerebrovascular Diseases | Last Active: Jul 15 6:48pm | Replies (116)

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@trishannabanana

I've been diagnosed with Cerebral Amyloid Angiopathy. It's a rare brain disease for which there is no treatment. I am looking for someone who also has it whom I can share thoughts with.

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Replies to "I've been diagnosed with Cerebral Amyloid Angiopathy. It's a rare brain disease for which there is..."

@trishannabanana, you'll find discussions about cerebral amyloid angiopathy here in the Stroke & Cerebrovascular Diseases group (https://connect.mayoclinic.org/group/cerebrovascular-diseases/). I moved your message to this long running discussion about CAA here:
- Cerebral amyloid angiopathy: https://connect.mayoclinic.org/discussion/cerebral-amyloid-angiopathy/

I did this so you can connect more easily with fellow CAA members like @nanatessie @cbenson524 @surf362 @sistertwo @shedwina @jkrysman @sphillips1952 @oldkarl and more.

Trishanna, can you share a bit more about you? When and how did you learn of your diagnosis? How are you doing today and what do you find challenging?