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@katgusman

I’m so sorry this is happening. Have you tried propranolol?

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Replies to "I’m so sorry this is happening. Have you tried propranolol?"

Hi there @rajiv33. I like your positive attitude and awareness of self management in trying to find triggers. Good for you for being your best advocate!

Regarding your doctor's statement, " Mr seulal we have run extensive test and it does not point to css". While I am not a doctor, I know that there are no tests that prove CSS. CSS is diagnosed by process of elimination and the ruling out of other test proving diagnoses.

When the body continues to respond and react in a hypersensitive way, after any acute issue has healed and over 3 months, it's usually considered chronic. From what I understand there are many reasons why the body may experience vibrations, tremors, spasms, etc. and diagnostic testing is imperative.

The importance of understanding CSS, is for when (or if) the time comes where those plethora of other diagnoses have been ruled out and you hit a dead end. The scientific explanation of central sensitization may bring some sort of semblance to the otherwise unknown.

Many doctors are simply not aware or educated on CSS mainly because they have their specialty lane to follow in their field of medicine. That may consist of helping or fixing by surgery, procedure, medication, injection, etc. Once upregulation of the central and peripheral sensory input nervous systems occur, medical treatments typically have shorter lasting effects or don't help at all.

In any event, no, CSS is not always the answer for vibrations and tremors, but it just may end up being the culprit when everything else is off the table. I always feel that knowledge is power. Keep the info in your back pocket so you can stay on top of your game while self-advocating along your journey.

Good luck with your experimenting. I hope you narrow down triggers and find ways to help control your symptoms. 💪 Positivity and hope are your friends. Keep your chin up!