Hello @carrie55 and welcome to Connect. I'm sorry to hear of this new diagnosis and the frightening way that your medical team has presented your diagnosis and your future. I've never heard of such a negative presentation before. As you live in Canada, I understand that your health-care system is different than that in the U.S.

From my understanding, NETs and Neuroendocrine Carcinomas usually refer to the same thing. Are you being seen at a cancer center in Alberta? Have you had a Gallium 68 PET Scan? This type of scan is the best way to determine the presence of NETs.

–Please see the Connect discussions on this type of PET scan. Here are the links,
https://connect.mayoclinic.org/discussion/gallium-68/
https://connect.mayoclinic.org/discussion/what-nets-show-on-gallium-scan/
I'm wondering if you would be able to contact a NET specialist. Perhaps a phone or video consult could provide you with some additional help. The Carcinoid Cancer Foundation website offers a world-wide listing of NET specialists. Check out their website and see what you can find near you.

You mentioned that you were starting chemotherapy. What type of chemo is this? Also, has there been any discussion of a liver embolization to lessen the tumor load? These are good questions to ask your medical team.