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Letrozole and checking estrogen levels
Breast Cancer | Last Active: Aug 8, 2024 | Replies (93)Comment receiving replies
I too was put on Femara AI, and have been asking for a baseline estrogen test which neither the Oncologist nor Gynocologist was finding necessary to do. The GYN told me not to bother because "finding out the results would drive me nuts!" She said just take the AI and don't ask questions! The Oncologist thought it might be a good idea but never actually bothered to order the bloodwork.
I finally out of personal interest got my GP to do a blood test for estrogen levels and Vitamin/Minerals etc. So that I know for myself what's going on.
My Estradiol score is 18 pmol/l. which is already extremely low for postmenopausal. I talked to my GYN again and she says, take the AI anyway!
Really don't get their logic, considering the after effects of AI are not to be understimated. Yes, they reduce the risk of cancer return, but it also increases cholesterol which could lead to heart issues and decreased bone density leading to osteoporosis. I already have all the symptoms of low estrogen. Should I really be decreasing it to what? Below 0?
I'm not convinced with the plan, if they don't explain to me why they have no interest in knowing from what level estrogen they start treatment, and to what level they aim to go. It's just "shut up and take the AI for 5 years"
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I, too, was in the same situation and very frustrated with their lack of concern/interest in serum estrogen levels. They seemed so important during the Anastrozole study I was in. But when I "failed" the study, the estrogen levels were no longer important. Seemed very contradictory to me. I decided not to go on Letrozole, which was the next AI in line. The side effects/payout wasn't worth it for me. I am amping up my immune system for overall better health (guided by integrative medicine physician). It was a very difficult decision for me, but I don't want fear to run my life. I'm doing the best I can and what will, hopefully, work for me. There is no magic pill/program for everyone. We all need to support each other and do what we can to move forward and be positive. I wish all the best to you in your journey.