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After MVD surgery Trigeminal Neuralgia: How are you doing?

Brain & Nervous System | Last Active: Sep 22, 2022 | Replies (22)
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@mrwtexas

Same experience. I am 3 months post MVD and hints of pain started about 3 weeks ago. Last night, and for the second time in a week, I was jolted awake by severe episodes. Surgeon says last Friday, “sorry it didn’t work for you”. I’ve been referred for Cyber Knife. I was hoping surgeon would at least do an MRI to look for a cause, but rather I was punted. Neurologist yesterday referred me to Pain Management. I feel abandoned.

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Replies to "Same experience. I am 3 months post MVD and hints of pain started about 3 weeks..."
Colleen Young, Connect Director | @colleenyoung | Sep 21, 2022

That feeling of being abandoned, especially when you had so much hope for the results of surgery, is a hard one to take. It does sound like you've got a path forward. Being referred for cyberknife will likely result in your getting imaging studies to look for the root cause that surgery was unable to resolve. That gives hope back, right?

And then being referred to pain management also seems like a good interim step until a more permanent solution (hopefully cyberknife) can be found. You don't want to be in pain between now and then.

What are you doing now to help with the pain?

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