MVD surgery and memory loss

Posted by smurfieallena @smurfieallena, Mar 13 11:22am

I had MVD surgery for Trigeminal Neuralgia in October of 2020 and since surgery, I am having a hard time processing new memories. I can remember maybe 30-40% since about a week before surgery. For example, I've had a friend come visit about 6 times, I only remember about 2 of those times. And not the whole time he was here. I remember blips of the 2 times. It's like I'm watching my life in a movie and parts are missing. My ex husband came to check on me and I have no recollection of him being here. I was in the hospital for two days and can't remember any of it. I'm missing big chunks of these last 5 months and it's not getting any better. Has anyone else experienced this? The neurosurgeon only did one follow up visit and it was a phone call so he was no help. My neurologist hasn't been much help. I don't know what to do.

@smurfieallena– Hi. Unfortunately I read/hear about these situations all too often. At the risk of sounding direct, your surgeon will be of know help with the situation you are expressing. Once he has completed his job, it’s on to the next patient to make more money. There is no “care” involved with elective surgical patients. To throw out the disclaimer, I am by no means a medical professional, but I can share with you what I know…
-Unfortunately patients are not properly informed on the overall affects surgery has on the body systems.
-Surgery is a trauma (shock) to the body. Your body has to figure out how to operate in this new altered state. A surgery to an arm, leg, hip is different. You have a therapist to help you regain strength, movement etc…With a surgery that is closer to the brain or intracranial, you don’t have that.
-Have you contacted a Neuro Psych? Someone who is specifically experienced with helping patients post surgery?
-The brain is very complex and a mix of sensitive neurotransmitters, that all have to be functioning at optimal levels for memory processing, mood etc…
-It takes a lot of brain energy to operate the entire body as well as recover from an invasive intracranial surgery.
-I would focus on brain health activities and nutrients first and foremost for optimal neurotransmitter function. When serotonin is low, memory formation depletes.
-The brains responsibility is to protect us from harm. Sometimes, post surgery, especially the closer to the brain, it can get stuck in a protective state, which eliminates all ability to create new memories and be creative.
-The Trigeminal Nerve is the most powerful nerve in the body. And responsible for many signals to the brain. The trigeminal nerve actually has a lot of serotonin signaling running along the pathway.
-There are reasons they have counselors/therapists specifically for pre op/post op time frame.
-Any intracranial surgery is a huge shock to the system and needs to be treated and managed as such.
-Unfortunately people undergoing surgical procedures are only given the high risk injuries. But never warned about the other more common occurrences that can not be predicted.
-Again, I am not a medical professional, but you can ask any Neurologist these questions and they will probably not want to discuss this aspect because it is beyond their scope they get paid for. You would have better luck speaking to a Neurologist (whom does not perform surgery) about how this all works. Which is why I recommended atleast talking to a Neuro Psych.

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