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Low T-Cell - Bone Marrow Biopsy

Blood Cancers & Disorders | Last Active: Nov 15, 2022 | Replies (162)

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@mariabrat

Hi @loribmt !

I hope you are doing fine <3

I went to another cardiologist yesterday...Basically told me that they did everything they could do at the hospital in CA (7 days monitoring Holter, CT scan, Ultrasound with effort). He said that he is not able to explain the tachycardia and that the low blood pressure after sport is not a problem. He said I have probably a very severe Posttraumatic disorder and that I should take a week off work and do sport and that I should take the ativan if I feel anxious that my heart beat fast. He said I should not go to any other specialist right now and just calm down. I am quite pissed off.

I have been reading about dysautonomia and I feel that it could potentially be some sort of autoimmune affecting my nervous system and therefore my heart? I don't know to be honest...Maybe its worth trying some medication? "Treatments include: Tricyclic antidepressants such as Elavil, Norpramin, and Pamelor have been used, in low dosage, to treat several of the dysautonomia syndromes. Selective serotonin reuptake inhibitors (SSRIs) such as Prozac, Zoloft, and Paxil have also been used to treat these syndromes."

I am a bit lost with all of it... and not really sure what to do...On Friday I am going to my infectiologist and monday on my immunologist so I am hoping to get some of their answers? 🙁

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Replies to "Hi @loribmt ! I hope you are doing fine <3 I went to another cardiologist yesterday...Basically..."

Hi Maria, oh golly, I can feel your disappointment and frustration. Being essentially told it’s anxiety when you’re obviously having symptoms that are alarming is awful. You’re not along in this as there are a number of members who share similar experiences on their quest for answers.

When you mentioned dysautonomia, I found several discussions in the forum you might be interested in reading. Some are old but they follow in chronological order and you can start with the most recent by clicking that option in the menu under the heading.

I’m on the road today so I’ll be off-grid for several hours but wanted to get you this information to start with. I really hope your other doctors on Friday and Monday help give you some clarity and aren’t so dismissive. I feel so sad you’re going through this! Wish I could reach through the computer to give you a big hug… 😕

-Treatment options for Dysautonomia
https://connect.mayoclinic.org/discussion/in-2011-i-was-diagnosed-with-dysautonomia-it-is-not-pots-but/
-I'm having multiple odd episodes that are keeping me undiagnosed. Help
https://connect.mayoclinic.org/discussion/im-having-multiple-odd-episodes-that-are-keeping-me-undiagnosed-help/
See if any of these conversations sound familiar to you and feel free to pop into those chats!!