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@astaingegerdm

@washalien - You have been sick for a long time- I know how that feels. Life passing by so fast. I had collagenous colitis initially and later on nondescript patches of inflammation throughout my GI tract. At first there was a trial of medication elimination, food elimination- no change. Budesonide was the best except for prednisone. By the way, I had breast cancer many years ago. I had severe intestinal reaction to chemo which finally was thought to have caused my chronic microscopic colitis. I decided to try immunosuppressive medication because I just could not live like I did. I was on it for several months and it worked. I got monitored monthly. I did have many infections, which is why I stopped it.
I’m happy it worked

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Replies to "@washalien - You have been sick for a long time- I know how that feels. Life..."

It's an on-going journey I'm afraid to take the immunosuppressive meds because I've hd cancer twice, and figure it's a risk. For me, the budesonide made my skin so thin that it was tearing off when I'd just brush against something. I'm working with my current doctor on trying things for a few months. If we don't find any good answer, I'll probably go to the Mayo Clinic when the weather is better. Thanks for your reply. This group is clearly not very active --- too bad.