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@astaingegerdm

@petepat3234 - I was first diagnosed with collagenous colitis 10 years ago- out of the blue. None of the OTC meds did more than allowing me out of the house for a couple of hours. At one point it was so bad I could not leave my room/ bathroom. The GI doctor then treated me with methotrexate. I was also extremely weak from loss of fluids and electrolytes. I drank Gatorade and Pedialyte. The illness returned after a year or two- waxing and waning, leaving me very exhausted and weak at times. Budesonide took the edge off symptoms and prednisone made me feel normal- until I stopped it. Finally, 4 years ago, I was put on immunosuppressive Imuran for several months. It was rough but it worked.
I ended up with normal function, except IBS, but feeling extremely exhausted. In my mind it is the result of chronic”acute” stress for years when there was pain/ discomfort every day - like being burned out.

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Replies to "@petepat3234 - I was first diagnosed with collagenous colitis 10 years ago- out of the blue...."

I've been wondering about the immuno-suppressive medications. I took budesondide for 2 or 3 years until my skin was so thin it would just peel off! I've gone off it, but the usual "col" what-ever-they're-called pills and powder just DON'T do the job. I've had this for about 20 years. I've had cancer twice, which is the reason I haven't done one of the new ones, but I'm wondering if you can take it anyway and just be closely monitored. I'd like to hear from anyone who might know about this conundrum. Thanks.