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I am looking for others diagnosed with microscopic colitis
Digestive Health | Last Active: Oct 27, 2023 | Replies (198)Comment receiving replies
If I walk too much I get diarrhea run to bathroom this goes on for hours sometimes days. I have been on Apriso for a few years. Just seems I can't win. Stay around the house even if I mop or run vacuum this happens. I have spinal stenosis that has been painful I have received therapy and shots in the spine. I wonder if the nerves in spine being crushed that causes this problem? It's only been happening for about a 6th month period. Ah well if anyone else has this I would like to know how your quality of life is. Thank you.
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I’m so sorry you’re experiencing this, and I do understand. I was taking mesalamine for a few months (generic for Lialda) to keep my ulcerative colitis under control. Unfortunately, I developed acute pancreatitis from the mesalamine and was told by my GI doc to discontinue immediately. Within 13 days, I was in another wicked flare - bloody diarrhea every single day for a month now, despite using Uceris rectal foam (budesonide). As far as how this affects my life - it’s horrible! I can’t leave the house! My GI doc is getting me ready for biologics, Entyvio, to be exact, and I am terrified of the side effects! But this bloody constant diarrhea 6-12 times a day has just destroyed my quality of life! I was healthy and looking forward to retirement and so far, it has been a daily struggle just to do normal things. I hate living like this and it breaks my heart what it’s doing to my husband. It’s a hell of a way to live and I am hoping there will be a safer medicine for this devastating chronic disease!!! Talk to your GI doc; there are different amounts of mesalamine you can take, or maybe it’s just not working for you anymore. I feel for you! I understand what you’re going through and I hope you are able to get some relief!! Good luck!