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Invasive ductal carcinoma (IDC): Anyone else?

Breast Cancer | Last Active: Mar 24 10:10am | Replies (223)

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@anjalima

Jussnunu, hi, and I’m very sorry to hear of your diagnosis.

I too was diagnosed with IDC in January; right breast. I had two tumors ( much bigger than yours) so the placement eliminated any possibility for a lumpectomy, but it may possible for you. I had a unilateral mastectomy with 8 nodes dissected ( removed). I did not need chemotherapy based on a typing called ONCOTYPE.

I was terrified when I got the diagnosis and can easily relate to how you feel right now and I too assumed chemotherapy and hair loss ( 5 months before my daughters wedding) was in my immediate future. But as it turned out it wasn’t!

So, the advice I offer, until you have more information, is that you understand that there are lots of variables and no one plan fits all. Allow all the fears and anger and incredulity to have their time to be expressed and then Take a deep breath and step back into Gentle Warrior Mode.

You must educate yourself so that you can self advocate. And pull in a trusted support person who can help you sort through the information and help you make decisions… you will need to make decisions.

Based on the biopsy some information is available but some needs further analysis ( likely requested) . So, are you waiting for any test results now?

Most important is to get the earliest possible appointment with an oncologist. Also of note, IF you are hormone positive you will likely be taking a hormone blocking med. I encourage you to ask your oncologist if you are a candidate for an ONCOTYPE analysis . If you are a candidate there are concerns about starting the hormone blocker before an adequate tissue sample is taken. It may negate the ability for ONCOTYPE analysis.

Questions to ask :
-Stage of cancer?
-Grade?
-Hormone positive or negative?
-HER 2 Positive or Negative?
-genetic based gene mutation?
-Node involvement ?
-am I a candidate for ONCOTYPE DX?

So many factors determine treatment. The good news ( in the not good news) is that treatments have improved greatly over the years and are being tailored to individual situations.

If you are physically close to a major Breast Cancer Center like MEMORIAL SLOAN KETTERING, MAYO CLINIC, MD ANDERSON, Montclair Breast Center etc. these are GREAT OPTIONS. Many large hospitals have cancer centers with Breast Cancer specialists too.

Lots of great information at SusanGKomen .org.

This is tough and web are here for you!

Please keep us posted. 🌸

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Replies to "Jussnunu, hi, and I’m very sorry to hear of your diagnosis. I too was diagnosed with..."

Thank you for the info