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@kasotarat

I have a heartmate lvad. It has been nothing but trouble. Yes, it has kept me alive in the literal sense but.. my machine has been recalled for over 14 different reasons now I've been involved with three of the recalls. I was told I was going to be put on a transplant list as soon as I got my BMI down. Well that took like a month. A year and a half later I asked so where am I on the list? They replied, you're not on the list. I never would have got this damn thing if not for being on the list. Then they sold me this thing over the heartmate. Telling me new is better. So yes my machine has kept me alive and I've got to be with my family a little while longer but I feel completely used for a study. And then I was completely dropped when my lvad got recalled. The whole atmosphere changed. It was like they didn't know me didn't give a s*** about me and I was annoying them. I can't say anything about other people's experiences because I know they do a lot of good but, Mayo really screwed me over and used me. I was put into a control group never going to get a transplant. And was never told. Nice huh?

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Replies to "I have a heartmate lvad. It has been nothing but trouble. Yes, it has kept me..."

Correction I have the heartware device Generation 1. There is very little clothing, very little options in vests. Because the machine was new and recalled quickly nobody bothered to make anything for it. I'm sorry to sound so disgruntled about my experience but let me say again it has let me stay with my family longer, I stayed with my dog till she passed away just last week, repaired relationships in the family and forgive a lot of people. And I finished my little bucket list I made for myself. Ultimately I never would have been able to do that without the lvad. But I spent the first two years minus Maybe 3 months in the hospital dealing with this POS. Once again I have the heart ware. Anybody reading this if there are only two options you definitely want the heartmate 3. But this is September 2022 hopefully by God they invented something better if you're reading this in the future well distant future.