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CLL leukemia: Just diagnosed, what can be done?

Blood Cancers & Disorders | Last Active: Jul 20 8:54am | Replies (200)
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@sonia85

Thanks for your information dear ,yes I did it with sedation, actually in the current time a dont have any love for food cuz you know am worrying about everything because it’s not clear enough , another question am 64 now , at which age u got Cll? And now u are in the which year ? Still u have Cll , or did you take treatment ?sorry for saying that just am wondering about the stage of Cll

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Replies to "Thanks for your information dear ,yes I did it with sedation, actually in the current time..."
Lori, Volunteer Mentor | @loribmt | Sep 17, 2022

Hi Sonia, I can completely understand how all of this uncertainty is messing with your appetite. Even normal activities like eating or trying to relax feel impossible because our brain just won’t let go of the ‘what ifs’…

The best way to get through this phase of waiting for your doctor’s report is to distract yourself with things that bring you joy. Also staying busy with your normal daily routine is important too. You can take control of this anxiety and worry. 🙂

I guess I wasn’t clear about what cancer I did have. I am a leukemia survivor but it wasn’t CLL. At the age of 65, I had Acute Myeloid Leukemia (AML) which is a very aggressive and a rapid onset blood cancer. After treatment with chemo and ultimately a bone marrow transplant I’m happy to say, 3.5 years later, my doctors (and I) are highly optimistic that this is all behind me now and I feel fantastic.

Since my transplant it’s been my privilege to help others who are going through their own blood cancer journeys, to let them see there is hope that this isn’t the end of their story.
One of the members I mentor is featured in this nice story that was in our Mayo Clinic Cancer blog. You can see what I look like! https://cancerblog.mayoclinic.org/2022/09/07/mayo-clinic-connect-brings-together-2-women-with-leukemia-46-years-apart/
I know you’re really scared and filled with worry for what might be ahead. But you don’t even have a firm diagnosis yet, so worry about ‘what ifs; is only going to foster more anxiety.

I’m here for you and there are also many more members in our forum who have CLL who will help guide you along this new personal journey. But first let’s find out if you actually need any treatments at this time.
Do you have a spouse, family members and friends around for support?

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