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New to MAC and considering treatments options: What did you do?

MAC & Bronchiectasis | Last Active: Nov 19, 2023 | Replies (190)
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@sueinmn

If I understand correctly, you have neither Bronchiectasis nor an infection at this point.

One question that we would never have asked 4 years ago, but which is relevant now, have you had Covid, even a mild infection? Doctors are seeing a lot of lung changes, especially "ground glass opacities" after Covid infections. Many seem to resolve themselves over time, without turning into something more serious.

What led to the CT scan that showed the irregularities?

I think, at this point, the "wait and watch" approach is what most doctors would recommend. Did you pulmonologist suggest a follow-up CT in a year?

In the meantime, the best things you can do are stop smoking or vaping if you do either, stay as healthy as you can with diet, exercise & rest, and report any changes in your lungs to the doc promptly. Are you comfortable with that approach?
Sue

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Replies to "If I understand correctly, you have neither Bronchiectasis nor an infection at this point. One question..."
cwal | @cwal | Sep 17, 2022

No Bronchiectasis or infection

No Covid (or if I had it, it was so mild I did not know I was sick)

I had a CT Scan prior to having an Atrial Ablation for Paroxysmal Atrial Fibrillation and some small nodules were seen in my lungs leading to further follow up.

This last visit with the Pulmonologist scheduled the next follow up CT for January.

I do not smoke. I am an active person and in my opinion I follow a good diet. My husband has Chronic Renal Failure (no dialysis thank goodness) and I follow a renal diet for him and by default myself. I just add some salt to my food if needed.

I think I could be comfortable with the wait and watch approach if I get a second opinion from someone who will listen to my concerns and answers my questions without a dismissive go home and don't worry about it. I need more reassurance and info about my current status than that.

I think my focus right now will be to learn all I can about MAC and find a second opinion wherever that my be.

Any further suggestions or information are welcome and appreciated! Thank you again.

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