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Mantle Cell Lymphoma and MDS (RARS)

Blood Cancers & Disorders | Last Active: Sep 25, 2022 | Replies (7)
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@hlmcneely

I’m interested in this discussion. I had been diagnosed with ITP years ago, no treatment, well actually no nothing. After platelets dropped I was sent to hematologists/ oncologist who had a bone marrow biopsy done. It showed a couple mutations and was sent to second oncologist who diagnosed me with MDS. He wants blood work done every two months. Next one on September 25 .

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Replies to "I’m interested in this discussion. I had been diagnosed with ITP years ago, no treatment, well..."
Colleen Young, Connect Director | @colleenyoung | Sep 17, 2022

Welcome @hlmcneely, great to connect with @susan1000 in this discussion.

You may also be interested in these related discussions:
- Myelodysplastic Syndrome (MDS) https://connect.mayoclinic.org/discussion/myelodysplastic-syndrome-mds-1/
- I have Myelodysplastic Syndrome (MDS) spawned from ITP https://connect.mayoclinic.org/discussion/i-have-myelodysplastic-syndrome-mds-that-spawned-from-idiopathic-thrombocytopenic-purpura-itp/

Susan can affirm the importance of monitoring. Hlmcneely, don’t be surprised if monitoring is the only “treatment” if you have no symptoms. It’s often called watchful waiting or active surveillance. Some people are nervous about watchful waiting. How are you doing?

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