Hi @bbresson, welcome. I moved your question about recommendation for EBV specialists in the Phoenix area to this existing discussion:
- Doctor Recommendations for Chronic active Epstein–Barr virus (CAEBV) https://connect.mayoclinic.org/discussion/ebv-chronic/

I did this so you can connect with other members like @bt123 @kefnb @tricia13 @seehawkeye @mrmie @cknight @lesd70 who may be able to provide recommendations and answer questions for you.

You might also be interested in this related and active discussion:
- Treatment for chronic Epstein-Barr virus (EBV) https://connect.mayoclinic.org/discussion/treatment-for-chronic-epstein-barr/

Bresson, If Mayo Clinic is an option for you, here is more information about how to submit a request for an appointment online: http://mayocl.in/1mtmR63

It sounds like you might benefit from the multidisciplinary approach of Mayo Clinic.