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CLIPPERS: Looking to connect with others

Autoimmune Diseases | Last Active: Dec 7 10:15pm | Replies (323)
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@dustymi11er

Hi becsbuddy

Graeme here

Just checking in it’s been a while but finally today I seen my new team of neurologists. I’m to taper off the 60mg steroids and from tomorrow I also start on mycophenolate. How are you finding it. The steroids have taken there toll so really pleased to be getting off them
Hope your well

Regards

G

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Replies to "Hi becsbuddy Graeme here Just checking in it’s been a while but finally today I seen..."
Becky, Volunteer Mentor | @becsbuddy | Oct 1, 2022

@dustymi11er
Oh, Graeme, it’s great to hear from you! I’ve been away from Connect for awhile. My mother died and I’ve been in Washington, DC. Mycophenolate is a good drug but you have to carefully watch your timing. The medicine needs to be taken 1 hour before eating or 2 hours after. Some days i go crazy figuring out the timing, but the medicine works, so…
Have you talked about osteoporosis with the doctor? It’s a major side effect of prednisone therapy, so you want to catch it soon.
We have some new members in this group and your experiences with clippers will be very helpful for them so please stay in touch with us. Will you do that? Becky
Have you been able to return to work or school?

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