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Immune Thrombocytopenia Purpura (ITP): What helps?

Blood Cancers & Disorders | Last Active: 1 day ago | Replies (174)
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@colleenyoung

Jimmy, hematologists specializing in ITP are available at all 3 Mayo Clinic locations and in the Mayo Clinic Health System.

Welcome @tammielou and @julesknox, interesting that you were both diagnosed with ITP at ages 9 and 8, respectively and found different effective treatments. Like Tammie, @treslynetteaba also had a splenectomy and Jules had intravenous immunoglobulin therapy (IVIG). Jules, I'm glad that this IVIG has had a long lasting effect for you.

Are there any precautions that you still take having had thrombocytopenic purpura?

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Replies to "Jimmy, hematologists specializing in ITP are available at all 3 Mayo Clinic locations and in the..."
julesknox | @julesknox | Sep 19, 2022

Not really, there is a risk of it returning so if I notice unexpected bruising or purple spots, I get a full blood count test done to check platelet level but the mega dose of the immunoglobulin has worked for me

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leilab1 | @leilab1 | Apr 17, 2023

My 24 year old son developed severe liver dysfunction mere weeks after booster shot. He now also has ITP and platelet levels are 8 - white blood cell count is 1. He has had 4 platelet transfusions but counts drop the next day. They won't do bone marrow biopsy because his platelets are too low. Steroids have decreased high liver enzyme levels and his Bilirubin which was 13 is now 2.8. Any success with medications that boost platelets available?

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