← Return to New and undiagnosed

Discussion

New and undiagnosed

Lung Health | Last Active: Dec 12, 2023 | Replies (131)

Comment receiving replies
@sueinmn

Wow, Yvonne, the report on your improved sats sounds like healing to me!

Thank you for sharing your history with me, it helps me understand better what you are experiencing now. Please don't stop taking your long term meds "cold turkey" to see what the effect is - it won't give you a true picture, and depending on the med it can be unhealthy to just quit. Also, there are many newer meds now available that weren't 20 years ago, so your docs should be able to find safe replacements.

Can we chat some more to try to find a "next step" for you toward regaining your confidence in your ability to breathe? Do you have any follow-up appointments to try to figure out the cause of this episode?
Sue

Jump to this post


Replies to "Wow, Yvonne, the report on your improved sats sounds like healing to me! Thank you for..."

Yes I would love to chat and be able to move forward with confidence. I cooked myself lunch and my heart rate was a bit high. I dont know if its anxiety or my heart trying to pump oxygen around or maybe its saying omgosh we are moving! Not used to that! I see the doctor in person Friday so he can listen to my chest and lungs. With my improvements he may not deem it necessary to see a lung specialist. Hes just that kind of doctor! But yes please I would love to chat regarding gaining confidence in my breathing! Thank you!!!

Hi Sue! Well what I thought was healing, wasnt. On Sept 20 my bp went very low and pulse undetectable by paramedics. I was freezing and restless as drs rushed to get 02 on me and get tubes and wires in me. My kidney function was down to 18% and things were shutting down. I was intubated and sent to a hospital where specialists are. I was on full life support upon arrival with a central line in my neck.
On the 24th it was extubated and it was hell. I underwent so many tests. A bronchoscopy, an Echo, Halter monitor looked normal. Ct had ground glass opiates but inconclusive. Days later I was sent to my home hospital. Put on heavy doses of antibiotics, the latest being amoxi-clav.
But I think we put the puzzle together. During my first stay I had aspiration pneumonia. But I was taken off antibiotics and sent home too soon. While trying to recover at home, the pneumonia came back and I also went septic. I was discharged from hospital Sunday after a lengthy course of antibiotics which I still take for 5 more days. I dont know how to make sure the pneumonia bug is dead this time but I'm praying! So I've had this since Aug 25. The books say after 30 days a person is probably going to be ok. Still lots of rest and recovery.