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My Experience on Evenity for Treating Osteoporosis
Osteoporosis & Bone Health | Last Active: 12 minutes ago | Replies (1023)Comment receiving replies
I have been on Evenity for a year and have DEXA scan scores from before and after.
Current Lumbar Spine is -1.3 Prior Lumbar Spine was -2.0
Current Femoral Neck is -2.2 Prior Femoral Neck was -2.7
Current Total Hip is -2.1 Prior Total Hip is -2.1 (unchanged)
Even though the prior femoral neck score was a -2.7 and not all that bad from the scores I have read on these postings, a year ago my thigh bone broke just above the knee while walking.
The new scores move me back into osteopenia. Now the goal is to maintain the bone density I have gained. With agreement from my endocrinologist I am going on Evista. I am not able to tolerate bisphosphonates and Prolia is also not an option for me. In addition to Evista, supplements for bone health and exercises continue. I don't ever want to break another bone.
Replies to "I have been on Evenity for a year and have DEXA scan scores from before and..."
Thank you so much @lbmorgan44 for posting these results! I really appreciate knowing that Evenity does work!!! I also have enjoyed reading all your previous posts. I'm new to this site and have been catching up with all the posts since 2020. My rheumatologist initially prescribed Evenity (which is not covered by my health insurer) and then Tymlos, and I'm currently researching these and other osteoporosis medications while awaiting a second opinion (next May). I'm a 60yo woman in the severe osteoporosis category with high risk for fracture but have never broken a bone (knock on wood!!!). All the comments have been helpful, some very helpful, like yours, with actual Dexa scores to show the effects of the medication. I hope you are continuing to post comments on your progress with maintenance meds and will continue to post the next Dexa scan numbers.
BTW, regarding those scores, here is a quote from the Web site bonehealthandosteoporosis.org regarding the scores: "It is important to recognize that you may be diagnosed with osteoporosis when the T-score is better than -2.5, as when you have already had a broken bone or FRAX shows that your risk is high."
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@lbmorgan that is such a strange story. Your spine and total hip scores were not even osteoporotic! And my report says that the femur neck score is not reliable for measuring change, not sure why. My femoral neck is always the worst and I suspect some sort of erosive arthritis is wearing bone down and throwing it off-?
Did your doctor have any explanation for your fracture above the knee? Good luck!
I read somewhere recently that people with osteopenia have the highest number of fractures but people with osteoporosis have the highest rate.