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New and undiagnosed

Lung Health | Last Active: Dec 12, 2023 | Replies (131)

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@yvonne55

Hi Sue,
I'm much better now than when initially coming home from hospital. Yes I'm showering and doing small jobs, picking up things off the floor, slowly doing a light load of laundry for example. But it's because I'm afraid. I'm afraid of doing too much because 1) breathlessness scares me so bad.
2) I dont want to find out I cant cook, or make a bed without becoming breathless because that sparks depression.
I have a very long history of anxiety and panic and was agoraphobic for 5 years. Due to a lifetime of anxiety and breathlessness from anxiety attacks alone, it just feels like I cant do this anymore, this continual fight to breathe normally. So I've been on a dose of ativan (2 mg a day) for 20 years. And 2 years ago my gp ordered 1 zopiclone for sleep at bedtime. Now he is saying those must be weaned away because both are central nervous system depressants. I tried for one day not taking the meds at all and my sats showed no difference between having no meds, to taking the meds. My sats were the same.
So when I arrived home and did things my sats went into the low 80s (just re-summing). Now when I do things, I am 90 to 91, and havent seen the 80s in a few days. I dont know if that indicates healing or just a few lucky days. Please feel free to respond. Thank you! 😊

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Replies to "Hi Sue, I'm much better now than when initially coming home from hospital. Yes I'm showering..."

I am also breathless with exertion, which is a post CV Moderna vaccine one symptom among many many others. I am just realizing there may be some Epstein Barr Virus influence in the sudden onset of air hunger months after the vaccine. I will treat for the EBV to see if there I have a positive response. Hope you are feeling better soon.

Wow, Yvonne, the report on your improved sats sounds like healing to me!

Thank you for sharing your history with me, it helps me understand better what you are experiencing now. Please don't stop taking your long term meds "cold turkey" to see what the effect is - it won't give you a true picture, and depending on the med it can be unhealthy to just quit. Also, there are many newer meds now available that weren't 20 years ago, so your docs should be able to find safe replacements.

Can we chat some more to try to find a "next step" for you toward regaining your confidence in your ability to breathe? Do you have any follow-up appointments to try to figure out the cause of this episode?
Sue