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Immune Thrombocytopenia Purpura (ITP): What helps?

Blood Cancers & Disorders | Last Active: 1 day ago | Replies (174)
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@treslynetteaba

Went through this after having my daughter.
Bone marrow ruled out cancers, went on high doses of steroids for months, couldn't ween off, platelets would drop severely. I was hitting 10k and lower. Couldn't scratch an itch without busting capillaries and I looked like someone beat me with softballs and nose bleeds were terrifying.
After 8 months, they took my spleen out, and the ITP REVERSED. 27 yrs later, still no bleeding issues

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Replies to "Went through this after having my daughter. Bone marrow ruled out cancers, went on high doses..."
jimmyb63 | @jimmyb63 | Sep 14, 2022

Thank you so much for your response and information. It helps to hear from someone who has been on this same journey. They did mention a possible splenectomy if these treatments do not work. However I will need a heart valve replaced in the future, so I’m hoping I can keep the spleen at least until after that. They also diagnosed me we Hpylori which I’ve read can cause your platelets not to increase until it’s eradicated.

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