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@becky1024

Just remember, you can have MGUS for many years and not show any symptoms. I had and still have a low grade fever for many years, 10 years at least. That’s the way your body defends itself my turning up the heat which kills many types of bugs. I never had many tests that showed different cells of the body like I get now. One blood test I get is for inflammation in the body. Its levels go from 0 to 5. For many of the tests, I registered a 1, meaning my body was fighting a bad guy like mild arthritis Then one test I got was during a kidney infection It registered a 3, meaning my body was fighting a pretty nasty bad guy. MGUS can also linger around many years. Take care. @becky1024

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Replies to "Just remember, you can have MGUS for many years and not show any symptoms. I had..."

I was tested for inflammation, too, to rule out some lurking autoimmune thing, but my sed rate was 20, within parameters for a woman my age.

Plus inflammation plays a role in many blood cancers, but I don't think anybody knows exactly how it works. Researchers are looking at anti-inflammatory diets to see if they help.

I have erythromelalgia (red and burning extremities), common for those with ET. It is intermittent and uncomfortable when it flares up, but it doesn't show up on tests.

It seems like people with good disorders and cancers drag a lot of weird symptoms around. The Mayo specialists in MPNs have been at the forefront of documenting these. Many clinicians are very skeptical of symptoms, but this us changing. Hard enough to have cancer without the doctor thinking you're a hypochondriac.