Hi @loribmt,

Thank you for reaching out! The camping trip was WONDERFUL- I am so grateful I went. The weather was beautiful and we were in a very stunning space without many people. I did feel my heart racing a lot and started to feel strange (chest tightness) while kayaking. I did take my Ativan and it at least help me not feel it that much, even if my heartbeats were still high. I do feel like absolutely unable to do sports, 2-3 steps in a slop and my heart is pumping like crazy!

I had my appointment for the electro a few days ago. I was running 10 minutes on a treadmill and the cardiologist was doing an ultrasound before and right after the sport and also monitoring my blood pressure. The heart structure and everything was fine, but the blood pressure did drop after the sport which is not normal - She said that she doesn't know why sometimes its a small infection that we can't see on the ultrasound. From what I read that would not go hands-in-hands with POTS syndrome...Which now makes me super confused why? They were not able to tell me.

I am flying back home on Thursday, and seeing my immunologist and the infectiologist next week and a cardiologist the week after. Hopefully, I will have the results of my cardiostat by then. I am very convinced it's a part of the undiagnosed autoimmune/infection condition that I have. One part of me is scared that they do not have anything to tell me and that they send me home again.