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PMR with hand/wrist pain and swollen veins?

Polymyalgia Rheumatica (PMR) | Last Active: May 16 4:33pm | Replies (45)
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@ajf

At first I was told my hands and left wrist were separate issues but over the past 2 years they are involved in every flare when I start my taper off Prednisone. I believe that the doctors and our selves are going to keep learning about this and are finding that each case may be different yet similar. Keeping a pain journal specific to area the pain is in is very helpful

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Replies to "At first I was told my hands and left wrist were separate issues but over the..."
katiepea | @katiepea | May 14 2:08pm

So glad and reassured to read this . My right wrist aches and you can see the veins pulsating and I have come to realise it’s each time when I drop down 1mg of prednisolone , so I go back up
To my previous dose and it’s ok . I leave it for a few more weeks then try again . I find all this quite scary at times. Feel so alone here in the UK . I was diagnosed in October 2024 the first two months I saw the doctor who spotted the absolutely painful
State I was in ever 4eeeks? Since then I haven’t seen a doctor at all, I have tried but it’s a nightmare here in the Uk . My vocal cords are affected too Please has anyone had that too ? Did finally see a doctor in January who’d referred me to an ENT specialist … still waiting for that appointment .

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